Hannah was born on October 30, 2013 with prenatally diagnosed congenital heart defect called hypoplastic left heart syndrome (HLHS). In hypoplastic left heart syndrome, the left side of the heart - the part that pumps oxygenated blood to the rest of the body - is underdeveloped. This heart defect is usually fatal within the first days or month of life unless treated. Due to the fact that Hannah’s heart defect was diagnosed prenatally her parents wanted to find out where their child should be born, in order to guarantee her the professional care. When Hannah was three days old she was transferred to Children's Memorial Health Institute in Warsaw where first open heart surgery was made. After 10 hours heart surgery she was stable but very sick. Hannah spends a lot of time in the ICU, tracheotomy was needed. After two months girl left the hospital. In home she requires specialized medical equipment and care.
Treatment for hypoplastic left heart syndrome requires either a three-step surgical procedure called staged palliation. First stage – Norwood Procedure is performed shortly after birth. Second stage - Bi-directional Glenn Operation is usually performed about six months after the Norwood to divert half of the blood to the lungs when circulation through the lungs no longer needs as much pressure from the ventricle. Hannah is now 26 months old and she still didn’t had that surgery. Huge number of medicine keeps her alive, but we must do our best to finalize her operation. Hannah’s parents were certain that they would be given a date for the next surgery in Poland but there's no date. We always thought that children should be qualified for a potential surgery when their bodies are in the best physical condition possible, and not when they are weak, especially that Hannah had many complications after her first surgery. We found prof. Malec, who performs surgeries in University Clinic in Münster (Germany), unfortunately for a payment because Polish National Health Fund does not help out financially with such surgeries abroad. The professor declared to perform a surgery as soon as we found money. The total cost of it is 36 500 EURO. We strongly believe, that her life will be saved thanks to people's goodwill gesture. Now its the only chance to save Hannah’s life.